Chapter 9: The Mask of Normalcy

The world doesn`t stop turning just because your world has been shattered. After the surgeries, after the hospital walls finally receded, I had to face the most terrifying thing of all: the return to “normal” life.

  1. The Sanctuary of the Office

Returning to work was my sanctuary. It was the only place where I felt equal again. Among family and friends, everyone knew what had happened; they looked at me with a mix of pity and forced optimism, pretending everything was fine while walking on eggshells. Sometimes, they even forgot about some of my disabilities and I had to explain to them again.. But at the office, I had to be professional. In that environment, I wasn`t “the survivor” – I was a colleague, a peer, a contributor (although they knew I wasn`t in good health after the accident, most of the people though it`s ok already). It was the only place where I felt almost normal.

     

 

  1. The Hidden Price of a Five-Day Week

But that normalcy had a hidden, grueling price. My daily life became a complex logistical operation. With urinary incontinence, I found a way to cope – simple pad was enough to handle the leaks when I coughed, sneezed, or dared to laugh. But the fecal incontinence was a different best altogether, complicated (thankfully) by chronic constipation.

I discovered a way to “survive” the work week by intentionally maintaining the constipation. I kept my body in a state of stasis for six days, just so I could feel socially secure enough to leave the house.

  1. Sundays in Isolation

Then, every weekend, the ritual began. I would take laxatives on Saturday afternoon, knowing that Sunday would be lost. Sundays were spent in total isolation. I couldn`t leave the house, and neither could my son. We waited behind closed doors for the medicine to work, over and over again. My weekends weren`t much for rest; they were for cleaning my body so I could put the mask back on by Monday morning.

  1. When the Mask Shook

Even with this strict control, the mask sometimes shattered. Twice, it happened on my way to work. Luckily, no one was around. I simply turned back, went home, cleaned the wreckage of my dignity, and returned to the office later, heart racing.

The third time was the hardest. I was with my son and his father (I also think two strangers saw the accident). Even though they were the people who loved me most, when the accident happened, I felt a wave of shame so cold it felt like ice. We had to turn around and go home. My family reacted normal, as much as possible, but in my head, I wasn`t just a mother or a partner anymore – I felt like a burden.

  1. The Breaking Point

This was my breaking point. Living in a cycle of six days in fear and one in isolation wasn`t “normalcy”- it was a prison. Seeing how my condition dictated not only my life but also my son`s life, thinking about him growing and starting to feel shamed by his mother, sparked something inside me.

I realized that if I continued to hide and pretend to accept this, I would spend the rest of my life in shadows. This was the moment I refused to be defeated. I stopped trying to “hide” the problem and started looking for a way out again. The search was officially back on.

Continuie reading: Chapter 10


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